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Advocate for UHC in your country!
New European recommendations on rare cancers
European Conference on Rare Diseases & Orphan Products 2022
EURORDIS COVID-19 Information Resource Centre

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EURORDIS COVID-19 Information Resource Centre

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Nominate your rare disease star to receive a EURORDIS Black Pearl Award

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EURORDIS Digital School: Free online training

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Patients and Services

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Call to action for policy makers: How to protect people living with a rare disease as confinement measures are being lifted

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Rare Diseases and Orphan Products Breakthrough Summit, 8-9 October

RareConnect.org online communities

RareConnect.org, together with the world's leading rare disease patient groups, offers global online communities allowing people to connect around issues which affect them while living with a rare disease.

Connect with others living with ASH1L-related disorder

To find out more about how you can join RareConnect, contact us.

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EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 929 rare disease patient organisations from 72 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.

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